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a passion for supporting patients

Impactful Voices

An older couple sits outdoors on a bench, both smiling. The man wears a blue cap and the woman wears a hat and sunglasses. Text overlay reads: "William, Dover, DE, Diagnosed with HAE.
A woman named Lisa from Dothan, AL, is shown in this image. There is a note that she is the grandmother of Letty, who was diagnosed with HAE.

Come celebrate the extraordinary

The image shows the United States Capitol building in Washington D.C. on a clear day, with a busy street in the foreground.

Rare Disease Week On Capitol Hill

February 24-26

Washington, DC

Learn more
Four people smile while holding a frame that reads "I Support the Rare Disease Community".

Rare Disease Day

February 28, 2025

Learn more
Aerial view of a city skyline with numerous high-rise buildings and a few clouds scattered across the blue sky.

HAEi APAC Regional Conference

March 7-9

Manila, Philippines

Learn more

Advocacy is the common thread
we thrive on

A woman with shoulder-length blond hair and a blue top is smiling at the camera. The name "Lauren Mills" is displayed on the left side of the image.
Associate Director,
Global Patient Advocacy

Every day we are working to help meet the needs of the patient communities we have the immense pleasure of partnering with and learning from. We have the important responsibility of elevating and embedding the patient voice and experience company-wide to ensure we are doing what is right every step of the way.”

A woman with curly hair smiles at the camera. The text on the image reads "Diane Ramsey-Paige".
Senior Nurse Advocacy Manager,
Global Patient Advocacy

As a nurse, you are taught the value of ‘patients as teachers.’ Their insights and experiences are so valuable, especially in rare disease. I’m passionate about patient advocacy and the vital role it plays in our mission at BioCryst.”

A woman with curly brown hair, wearing a gray dress and long earrings, smiles at the camera. Text on the image reads: "Dakota Fisher-Vance".
Associate Director,
Global Patient Advocacy

My job revolves around engaging with the most extraordinary people whose extraordinariness extends well beyond their or their community’s diagnoses and manifests every day in their advocacy work. Although my own rare diagnosis initially made me feel like I won the world’s worst lottery, at BioCryst, I am incredibly fortunate that my own experience led me to this career where I connect with and learn from fellow zebras daily.”

A woman with shoulder-length blond hair and a blue top is smiling at the camera. The name "Lauren Mills" is displayed on the left side of the image.
Associate Director,
Global Patient Advocacy

Every day we are working to help meet the needs of the patient communities we have the immense pleasure of partnering with and learning from. We have the important responsibility of elevating and embedding the patient voice and experience company-wide to ensure we are doing what is right every step of the way.”

A woman with curly hair smiles at the camera. The text on the image reads "Diane Ramsey-Paige".
Senior Nurse Advocacy Manager,
Global Patient Advocacy

As a nurse, you are taught the value of ‘patients as teachers.’ Their insights and experiences are so valuable, especially in rare disease. I’m passionate about patient advocacy and the vital role it plays in our mission at BioCryst.”

A woman with curly brown hair, wearing a gray dress and long earrings, smiles at the camera. Text on the image reads: "Dakota Fisher-Vance".
Associate Director,
Global Patient Advocacy

My job revolves around engaging with the most extraordinary people whose extraordinariness extends well beyond their or their community’s diagnoses and manifests every day in their advocacy work. Although my own rare diagnosis initially made me feel like I won the world’s worst lottery, at BioCryst, I am incredibly fortunate that my own experience led me to this career where I connect with and learn from fellow zebras daily.”

Our guiding principles

WE LISTEN to and integrate patient communities’ needs and insights, to ensure they are at the core of all we do

WE CULTIVATE enduring partnerships and collaborations through trust and transparency while valuing the autonomy of the patient organizations

WE PROVIDE support to patient organizations to advance shared goals, improve patient outcomes, increase disease awareness, and cultivate patient-focused policies

WE VALUE patient communities and organizations while adhering to all rules governing patient privacy and compliant collaborations

WE ADVOCATE for access to resources and all approved treatment options

WE UNDERSTAND that partnering with or providing financial support to patient communities is not contingent on a promotion or endorsement of a specific medicine or treatment

A pile of transparent safety goggles with the logo "BioCryst" on the frames.

Grants and sponsorships:
Collaborating with the communities we serve

We build genuine, enduring relationships based on trust and transparency with members of the rare disease community—including those who belong to the hereditary angioedema and complement-mediated disease communities—and all who support them. Through collaboration and listening, we meet patient communities where they are and foster empowerment through educational awareness and support initiatives. We offer a range of opportunities to provide financial support to these communities, from educational grants and sponsorships to charitable donations.
Request a grant, sponsorship, or donation >>

Your right to
privacy

Clinical research is critical for the development of medicines for rare disease. Just as we at BioCryst recognize the importance of sharing clinical trial data to advance our research, we also hold patient privacy to the highest standards. Find out more.
Clinical trials and data transparency >>

We are fortunate to work with some
extraordinary patient advocacy organizations

Have questions about our commitment to rare disease patient communities or how we work with patient advocates? Contact us >>